Our Mike

We have had yet another busy weekend up in Denver visiting the MDA clinic at The Children's Hospital. First of all I must say that the new hospital is wonderful and we just love everyone at clinic. They really try to make sure Mike and his family is doing okay with the new challenges we face each day.

While we were there we learned about a new study they are doing that Mike may qualify for. They took some blood, he did not enjoy that part, to identify what is causing his Duchene's Muscular Dystrophy. If they identify the cause as a premature stop codon (PTC) he will qualify for a study on PTC 124. This has some promising results so far and could help Mike and other boys like him in many ways. It does mean more trips to Denver, but we are hopeful this turns into something really positive for him. At this point we are just waiting for the results and then will make a decision based on the information they give us about the study and possible side effects. If you want to learn more you can go to MDA's website and click on research. Then just select the disorder Duchene's Muscualr Dystropy and it will bring up all the studies they are working on.

Aside, from clinic we spent time shopping, playing and just relaxing! Our sweet friends the Giles let us camp out in thier basement while they were away. We missed visiting but hope to have some time this summer when we take Mikey up to camp.

Mike also celebrated his 9th birthday all most a month ago. It's hard to believe how big he has gotten and how much he has changed. He is still my sweet boy in many ways, but establishes his independence on many occasions! He just earned his wolf badge and is very excited to be a Bear scout. He loves science and has a great teacher this year that really brings out the best in him. It's hard to believe we will hit double digits next year!!

The Wildlife Experience

Happy Birthday Buddy!

The Wolf Badge Mother's pin.